The meeting built on AMIA's prior work on the topic, 4 5 in light of new and evolving healthcare game changers: patient-centered medicine, heightened emphasis on performance measures and outcomes, the growing adoption of EHRs, and the emerging volume and importance of health data from non-clinical settings. 1–3ĪMIA's 7th annual Health Policy Meeting, held in December 2012, focused on key challenges related to data use-policy, technical, technological, and social-that must be met for the promise of data use to be fully realized. Many experts believe that use of these data beyond direct clinical care of individuals (eg, research, population health) is essential in order to generate knowledge and facilitate innovation that leads to better healthcare quality and outcomes for individuals and population groups with improvements in the efficiency and effectiveness of healthcare systems and overall reduction in healthcare costs. At the individual patient level, these data can be used to inform decisions about health, wellness, care, and treatments. A review of a set of Proposed Principles of Health Data Use led to a set of findings and recommendations, including the assertions that the use of health data should be viewed as a public good and that achieving the broad benefits of this use will require understanding and support from patients.Ī broad spectrum of health data is currently collected and could potentially be made accessible via health information technologies, such as electronic health records (EHRs), embedded sensors, and disease repositories. AMIA's 2012 Health Policy Meeting brought together healthcare academics, policy makers, and system stakeholders (including representatives of patient groups) to consider these topics and formulate recommendations. These include the need for widely agreed-on data stewardship principles and effective approaches to reduce or eliminate data silos and protect patient privacy. While use of these data has significant potential to facilitate research, improve quality of care for individuals and populations, and reduce healthcare costs, many policy-related issues must be addressed before their full value can be realized. Large amounts of personal health data are being collected and made available through existing and emerging technological media and tools.
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